Smart State: Big Data for Community Impact, April 29-30, 2021 , Princeton University

8th Annual New Jersey Big Data Alliance Symposium

The New Jersey Big Data Alliance (NJBDA) is an alliance of 17 higher education institutions, as well as industry and government members, that catalyses collaboration in advanced computing and data analytics research, education and technology.

The NJBDA Annual Symposium brings together academia, government and industry from across the state and beyond, to share information on the latest innovations, research and future directions in Big Data.

We’re talking about how to build Data Foundations in practice and are delighted to be sharing our work inthe research track. See ya there!

How can we accelerate accountable data sharing? We're on a panel at world renowned CPDP Conference on 28 January

CPDP is a world-leading multidisciplinary conference and offers the cutting edge in legal, regulatory, academic and technological development in privacy and data protection. Within an atmosphere of independence and mutual respect, CPDP gathers academics, lawyers, practitioners, policy-makers, industry and civil society from all over the world in Brussels, offering them an arena to exchange ideas and discuss the latest emerging issues and trends. This unique multidisciplinary formula has served to make CPDP one of the leading data protection and privacy conferences in Europe and around the world.

OUR PANEL: Multi-party data sharing and data subjects as beneficiaries: how to accelerate accountable data sharing?

Organised by: Computer Law and Security Review

Attempts to set up repeatable mechanisms or institutions to support accountable multi-party data sharing have not yet succeeded, although different models are now emerging. The extraordinary situation of the global pandemic makes it crystal clear that there is an urgent need to accelerate the re-use of personal data among different types of stakeholders, e.g. healthcare providers, social care providers, researchers and public health authorities. However, giving assurances to data subjects who should ultimately be seen as direct or indirect beneficiaries of such initiatives, including making the case that such data sharing will not feed mass surveillance and irremediably undermine fundamental rights and liberties of data subjects, remains a challenge.

The purpose of this panel is to discuss barriers to the sharing of personal data as well as necessary safeguards, and explore a variety of emerging multi-party data sharing models across jurisdictions.

* How can we accelerate data sharing between multi parties without watering down data subject rights?
* What are the emerging multi-party data sharing models?
* How do these models compare with each other?
* To what extent arrangements that have been built for health data in the context of the Covid crisis can be repeated and generalised?

Check out the New Public Festival. We're going to discuss how to make tech better! 12-14 Jan 2021

Come and join in and make social media beautiful again. We’re participating in an emergent conversation about what our public online space looks like over 3 days in our online park with an extraordinary group of designers, urbanists, technologists, builders, artists, and civic futurists.

Evaluating Ethics in Food Data Trusts - 10 December 2020

The food supply system is facing over-arching challenges such as climate-change pressures, growing population, human and animal health, and food and food-related waste. From a Food Standards perspective, the focus is on food safety and food security. In other words, food provenance matters. Working with Dr. Naomi Jacobs and Professor Louise Manning at the University of Lancaster we’re exploring how data ethics come to life in new governance models such as Data Foundations, particularly in relation to allergens and how health and food supply chain data combine to support people with access to more information to manage their nutrition.

Data For Policy 2020: 15-17 September 2020

We’re talking about how the best practice in data sharing can be achieved through the design and development of data foundations inspired by Channel Islands’ foundation laws. We approach this issue Data foundations to provide a robust data governance model that “supports responsible and sustainable non-personal and personal data usage, sharing, and re-usage by means of independent data stewardship” (Stalla-Bourdillon et al., 2019). 

The Fifth International Data for Policy Conference is the premier global forum for multiple disciplinary and cross-sector discussions about the theories, applications and implications of data science innovation in governance and the public sector. In partnership with Cambridge University Press, the conference series has also entered into a new open-access peer-reviewed journal venture, Data & Policy, in order to capture and archive scholarly discussions in this fast-growing field.

Horasis Extraordinary Meeting 01 October 2020

Horasis will gather 400 of the most senior members of the Horasis Visions Community (including several heads of governments and key ministers) to overcome the profound economic, political and social disruptions caused by Covid-19. We’re talking about trustworthy data sharing:

Building Trust post-Covid

Leaders often promise much yet fail to deliver, sometimes because of global events beyond their control: then the people become disillusioned, without hope. Will Covid-19 management destroy or build trust? How may we develop a trust to enable progress that can absorb economic, political and spiritual surprises originating locally or globally?

The Covid pandemic caused a rapid dislocation that will take years to clear. Many inconsistencies were found as governments globally searched to save lives, maintain people’s livelihoods and support the well-being of the planet. Coherent short-term solutions need to be rebalanced for the long-term that redevelop trust in our institutions. The time is ripe to bring about fundamental changes to our social and political structures – to be led by effective and principled leaders who follow responsible policies in politics, business and across all of society to confront the perils of climate change, econEomic, racial, ethnic and gender inequality. The Covid-19 pandemic has demonstrated the urgent necessity for increased international and inter-generational collaboration and collective creativity. 

Data stewardship and health data: Webinar 20 July 2020

An iCLIC and Web Science Webinar on Data stewardship and health data

Attempts to find legal, ethical and repeatable mechanisms or structures to support the multi-party sharing of regulated data have not yet succeeded, although different models are now emerging. The extraordinary situation of the global pandemic makes it crystal clear that there is an urgent need to accelerate the sharing of health data among different types of stakeholders, e.g. healthcare providers, social care providers, researchers and public health authorities. However, the danger is that such data sharing will de facto enable extensive surveillance programmes and irremediably undermine fundamental rights and liberties of patients and individuals.

The WSI is delighted to partner with the Interdisciplinary Centre for Law, Internet and Culture (iCLIC) for this special online event.

The purpose of this webinar is to discuss barriers to the sharing of health data as well as necessary safeguards, and explore a variety of emerging multi-party data sharing models. The speakers will provide insights into the needs of operational research (OR) in the healthcare sector, best practice to achieve legal compliance and meet ethical standards when sharing health data, and will compare solutions across jurisdictions.

Speakers

Prof Sally Brailsford

Sally is Professor of Management Science within the University of Southampton. Her research is in the area of healthcare simulation modelling: to evaluate treatments and screening programmes, or to redesign and improve service delivery. Sally has worked for over 25 years in many different disease fields including diabetes, cancer, mental health and HIV/AIDS, in addition to emergency care and end-of-life care. From 2012-15 she was Vice-President 1 of EURO, the Association of European OR Societies, and is currently Coordinator of the EURO Working Group on OR Applied to Health Services (ORAHS).

Elena Elkina

Co-founder and Partner at Aleada Consulting, a boutique privacy and data protection consulting firm in Silicon Valley, Elena leads the Privacy team of the Covid-alliance. The COVID Alliance is a volunteer-powered nonprofit coalition bringing together best-in-class expertise across science, technology, and policy in a coordinated response to COVID-19.

Alexsis Wintour

Founder of Lapin, pioneering new data governance frameworks to accelerate technology adoption and social good, Alexsis leads the Jersey Data Foundation project.

Ben Gordon

Digital Innovation Hubs Programme Director, Health Data Research UK.

Robert McCombe

Senior Policy Officer, Information Commissioner’s Office.

Moderator:

Prof. Sophie Stalla-Bourdillon

Sophie is Professor in Information Technology Law and Data Governance within the University of Southampton and non-ex Director of the Web Science Institute. Her research is in the area of platform regulation, privacy and data protection and data governance. She is also Senior Privacy Counsel and Legal Engineer at Immuta.

Big Data: The Ethics Ecosystem April 17, 2020, New Jersey

We’re running a session at the New Jersey Big Data Alliance Symposium at Kean University on Building Trust Through Data Foundations-  A Call for a Data Governance Model to Support and Incentivise Trustworthy Data Sharing. We’re in the track: Ethics and Big Data: Ethics in collection and dissemination of data 

The New Jersey Big Data Alliance (NJBDA) is an alliance of 17 higher education institutions, as well as industry and government members, that catalyzes collaboration in advanced computing and data analytics research, education and technology. The NJBDA Annual Symposium brings together academia, government and industry from across the state and beyond, to share information on the latest innovations, research and future directions in Big Data.

Sessions will be in the following areas:

 Ethics and Technology: Ethics in the development of technologies and tools - e.g. AI/ML, algorithm bias

 Ethics and Policy: Ethics in using big data in policymaking – e.g. education, economic development, housing, law enforcement, etc.

 Ethics and Big Data: Ethics in collection and dissemination of data – e.g. health data

Horasis Annual Global Vision, Cascais, Portugal 28-31 March 2020

We’re chairing a panel on female entrepreneurs as the Horasis Annual Global Vision Meeting. Horasis has more than 1000 selected world leaders gathering for an unparalleled experience devising novel ideas to sustain and nurture our development in the future.“Innovating Decisive Leadership through Times of Disruption,” The annual Horasis Global Meeting is one of the world’s foremost gatherings of business and government leaders, offering an ideal platform to explore and foster cooperation, impact investing, and sustainable growth across the world.

The 2020 Global Meeting will be held at a historic moment in which the world is facing existential conflicts and a void of leadership. Delegates attending are poised to discuss potential solutions and to propose pathways that lead to sustainable leadership on global and local levels. What does it take to be a responsible and effective leader in politics, business and society?

We’re Charing a Panel on 31 March 09.30-11.00    Empowering Female Start-ups (Room Nairobi)

Young women are outperforming their male equivalents at school and in higher education – but they are poorly represented as start-ups.  What is wrong?  What is holding them back – lack of business mentoring for the long-term, reluctance of financial backers, etc?  How can we better support them?

• Mireia Badia, Chief Executive Officer, Grow.ly, Spain

• Rita Casimiro, Director, MAZE - decoding impact, Portugal

• Olga Duka, Chief Executive Officer, Fination, Korea

• Mahdis Gharaei, Co-founder, the female factor, Austria

• Anh Hoang, Co-Founder, Sofregen Medical, USA

• Jamie Moy, Founder, Strongurl, USA

• Bernadette Ochsner, Partner, Live Lab AG, Switzerland

• Fatime Souckar Djibrine Terab, Chief Executive Officer, Khadar Holding Group, Tschad

• Linda Villarreal-Paierl, Chief Executive Officer, Paierl Consulting, Austria

Copy that? Surplus Data in an Age of Repetitive Duplication, 04 February, Shoreditch London

We’re joining the Open Data Institute in London for a sneak preview of a new exhibition in London which includes robots (yes! - there is a hot-pink ‘puppet-robot-hybrid’ who wants to chat) and explores “how ‘true’ is the data ‘you’?  From the myth of the perfect digital copy to the benefits and pitfalls of simulation, It raises questions about the purpose and trustworthiness of incessantly reproduced data.

Newly commissioned artworks on display are: Google mistranslated versions of William Blake’s poem Jerusalem, poems drawing on histories of human relationship alongside the blur and noise of technical evolutions and a digital pinball machine offering a neurodiverse experience of the city. Artists are Mr Gee, Alistair Gentry and Ben Neale, Edie Jo Murray & Harmeet Chagger-Khan.

Thank you for the invite - we’re delighted to accept